Khin Mar Aye, a 40-year-old woman living in Ye-U Township, was diagnosed with multidrug-resistant tuberculosis (MDR-TB) when a community volunteer from The Union’s TB project met her in a health education session and immediately recognized her cough, fever, weight loss and reduced appetite as symptoms of TB.
She was referred to the mobile clinic run by the Ye-U Township TB team, where she underwent sputum testing and chest X-ray screening. When the sputum smear showed positive, GeneXpert testing was undertaken, and a diagnosis of MDR-TB was made.
Khin Mar Aye was then connected to treatment and within two weeks was feeling significantly better. To further help her recovery, Khin Mar Aye was eligible for support and care from The Union’s Community Based MDR-TB Care Project, funded by Global Fund. The volunteer who originally helped get Khin Mar Aye a diagnosis has visited her regularly throughout her treatment, monitoring side effects from the medication and providing psychosocial support and counselling to ensure she’s able to continue the full course of treatment.
Khin Mar Aye says, “The support from the community volunteer and the healthcare provider has helped me to stay on my treatment, even during the difficult times when I was struggling with side effects from the medicines.”
She admits that taking long-term medication can be frustrating but appreciates the necessity of what she is doing, “I’ve been sick for many weeks, but I have to care for my daughters and earn a living for us. My goal is to get cured.”
Prior to diagnosis, Khin Mar Aye thought she had probably contracted a cold or flu virus. She had never known anyone with TB and was unfamiliar with the disease. She visited the local clinic a couple of times and took medicine to help relieve the cough and fever. However, the continued deterioration in her health soon meant she had to take a break from her job, and was unable to do even basic housework, with her eldest daughter recruited to help out while Khin Mar Aye lay in bed.
At first, Khin Mar Aye’s husband struggled to accept his wife’s MDR-TB diagnosis. Despite this, the volunteer undertook contact tracing in Khin Mar Aye’s family, using sputum samples and chest X-ray screening to make sure the family were free from TB infection. The Union’s TB project helped Khin Mar Aye and her family with transportation costs, so they could visit the TB clinic and hospital for follow-up care.
Now, Khin Mar Aye’s husband is grateful to the volunteer and The Union team for their involvement in getting his wife’s treatment. He understands what MDR-TB is, and how he should care and support his wife. For Khin Mar Aye, the road to full recovery from MDR-TB is long and hard, and so the more motivation and support she receives, the more likely the treatment will ultimately be successful.
On 15 January 2020, Khin Mar Aye completed the treatment and she is grateful to The Union team and local TB staff for giving her the support and encouragement she needed to stay on her treatment regimen to the end.
